If you are silent

if-you-are-silent-about-your-pain-theyll-kill-you-and-say-you-enjoyed-it-1

This quote has stuck with me a long, long time. Because something about it sort of struck me as intrinsically true for chronic pain.

The first truth is Insurance Companies. They will when you are on a long term leave come up with these random things for you to participate in. It could be physio or exercise or yoga or acceptance therapy. Could be anything. To ‘help’ you. You know you have to do it or you are ‘non-compliant’. So you do, because it may very well help you cope better. Then they find some reason to do with that, nothing to do with actually reality mind you, to cut you off. Because you are silent. And my recommendation if you are in this situation? Don’t be silent. Tell them what hurts, when it hurts, how it hurts. When it is difficult, when they expect too much. What happened Afterward? Where you laid out that day, two days, three days? Did it amplify your pain? If anything happens say so. Document it yourself very carefully and in detail. Because they will say you improved enough to go back to work even if your migraines are still every bit as daily as they were. And they will say you enjoyed it even if you are suicidal due to the pain.

The second, broader. It is society itself and people we encounter like doctors and employers who we have to deal with with chronic pain. If we suffer silently they will kill you with that pain and think it is fine to do so. That pushing through it, is the way to go. That forcing you to conform is the way to go. That more pressure, gets more results. That ultimatums will ‘help motivate you’. But you have to be clear and concise with people you encounter with your chronic pain. This pain is getting to me. I Cannot cope with it. I Cannot function with it. It is making me severely depressed. Otherwise, their indifference will kill you with pain. Their forcefulness to get your to conform will kill you with pain.

Yes, they will this it is okay to treat you as they do unless you stand up for yourself. Demand treatment from doctors. Demand accommodation from employers. I never have gotten anywhere from being polite, accepting and trying to please others. No, I blame myself for everything. Being sick, being unable to function, failing to function and for not being able to push through the pain all the damn time. Blaming myself though is self-stigma. I get blamed enough by others that I really don’t need my help on this one. We need to stand up for ourselves.

When we are in severe, relentless pain we have to advocate for ourselves. We are often undertreated. Doubted. Judged. Stigmatized. Beaten down and blamed for what isn’t our fault. As we are simply struggling to Survive. It is amazing that they have no clue what a horrific impact they have on us. How drastically their treatment can actually make us significantly worse. As for insurance companies… well, who even knows what their ‘burden of proof’ line actually is. I certainly don’t. I think they make it up as they go along.

Poem: Migraine

migraine poems4.png

This poem I simply call Migraine.

Lights waved and danced in my eyes,

Numbness trailed a cold line down my face.

How the migraines makes the senses lie,

But that is but a taste.

The pain struck like a bolt from the sky.

Light became so sharply insane.

Sound so sharp, even a sigh.

The world itself adding to my throbbing pain.

 

I wrote it quickly to go with the double exposure image I made. As a result, I like the first stanza better than the second. I might have to work on it more. Fine tune it.

Store

I added my zazzle store to the Sections pages to check out as I am actively adding products into it right now.

Here are some of the new ones. Today I was focusing on sayings that I have made up over time and put on memes for my pages. So everything on the page is something I have said. Nothing is from somewhere else.

I have not gotten around to the men’s version yet as it is time-consuming. I also have not gotten around to my migraine collection. This is a long-term project to get these all up and running. Procrastinated too long on them.

Migraines at work?

all-ready-to-go-to-work-so-is-the-9-level-migrainetriptan-failedwhat-do-you-do_

Migraines at work are not easy to manage. With my daily intractable ones I couldn’t manage them at work. My productivity was low. My absences high.

Here, however, is an article by Teri Robert on HealthCentral about working and migraines: Tips for Handling Migraines At Work

  • She mentions things like: Anti-glare screens, a no scent work environment, keeping hydrated with water.
  • She says to take your triptan at the first sign. Because as we all know, the earlier we take it the more effective it is. Assuming it is your triptan day, of course.

I have some additions I thought of that might help.

  1. Other things I would recommend are Axon Optics or Theraspecs glasses to help with photophobia in the work environment and those evil fluorescent lights.
  2. I believe people buy diffusers they carry around their necks for scents to help with migraines like lavender, or peppermint. Something like that may help at work.
  3. Finding somewhere where you can take a nap or do some meditation would also be very beneficial.
  4. Bring with you a migraine balm and magnesium oil you can apply when you feel an attack coming on.

 

 

Migraine treatment: Full throttle

chronic-illness-to-do

So I have been talking managing migraine pain very seriously lately. Can’t use a triptan except for 2 days a week. So what to do. What to do. Go full throttle is my answer.

I use ice right away and hope I can knock the pain down a level. If so, a good head start.

I use magnesium oil to get that magnesium into me fast.

I put a migraine balm, Japanese mint oil, on my forehead and temples

I put these CBD cream on my neck, shoulders, and jaw. If I do not have this, then something high in menthol.

I do some meditation.

I take zofran, ginger, and Gravol for nausea. Maybe have a peppermint tea as well.

Water for hydration.

And I put Lavender and Sage in my diffuser. Sometimes Bergamot.

Then when the pain begins to rise I repeat any number of these steps to keep it at bay. If the nausea gets worse, more ginger, or zofran, or tea or gravol.

 

It is a full on battle plan every single day. But some days I find this works. I can knock it down to a 5 and keep it there most of the day… sometimes it bumps up in the evening. Some days, usually the ones where I wake up with it, or hormonal ones, or epically painful ones…. not so successful. And I feel my ice treatment would be better if I had an ice hat, so I need me one of those in my life. I can’t imagine being able to do this anywhere but at home. It is non-stop all day. And it only works sometimes. So a lot of effort to get the pain down. Nevertheless having it work gives me a pain break… less pain to get through the day with.

But as soon as I leave the house, all for naught I’m afraid. Migraine amps right back up from all the light, the sounds, scents and having the drive. So no idea how people get around that.

Essential oils: Lavender

A study in European Neurology found_inhalation of lavender essential oil may be an effective and safe treatment modality in acute management of migraine headaches._ in their study..png

I have been cultivating different ways to manage the pain during the day. Being intractable means I have to go full throttle on other methods. Use what you have available to you. Now lavender isn’t my favorite scent for an essential oil, but I like mixing it with Sage. There is some research behind lavender which is interesting. (As I mentioned earlier in the week I rather like peppermint as well for nausea).

This is the study I mentioned:

METHODS:

Forty-seven patients with definite diagnosis of migraine headache were divided into cases and controls. Cases inhaled lavender essential oil for 15 min, whereas the control group used liquid paraffin for the same time period. Patients were asked to record their headache severity and associated symptoms in 30-min intervals for a total of 2 h. We matched the two groups for key confounding factors.

RESULTS:

The mean reduction of headache severity in cases was 3.6 ± 2.8 based on Visual Analogue Scale score. The reduction was 1.6 ± 1.6 in controls. This difference between the controls and cases was statistically significant with p < 0.0001. From 129 headache attacks in cases, 92 responded entirely or partially to lavender. In the control group, 32 out of 68 recorded headache attacks responded to placebo. The percentage of responders was significantly higher in the lavender group than the placebo group (p = 0.001).

CONCLUSION:

The present study suggests that inhalation of lavender essential oil may be an effective and safe treatment modality in acute management of migraine headaches.

Pretty good response rate to the lavender over the placebo. Not a bad reduction as well. When you think about reduction, I would have expected less, but this is decent. I would have preferred a larger samples size, but I always say that with these tests. If it isn’t a drug, the sample size tends to be lower.

The Journal of herbal medicine also did a study, longer in duration. Double-blind. Reporting a reduction in frequency and severity.

There is no cure for migraine, but preventive treatments are usually applied to reduce the frequency and severity of headache attacks. The purpose of this study was to investigate the effect of lavender as a prophylactic therapy for migraine in a randomized controlled clinical trial. This double-blind and placebo-controlled study was conducted over a period of three months. Patients were assessed for migraine impact at the baseline and at the end of the study, using the Migraine Disability Assessment Scores (MIDAS) questionnaire. In the case group, after three months of lavender therapy, the MIDAS score was reduced. The reduction in MIDAS score was significant (P < 0.05), when compared to the baseline and also control group. During the treatment, participants did not report any complaints or side effects. The results of this present study report that the frequency and severity of migraine incidents were reduced in those participants using lavender therapy during the three month trial.

It is one of the recommended aromatherapy migraine essential oils for your repertoire to try. I like the research. It makes me pleased there was some positive results for it. Mainly because if I believe there is positive effects, it will increase the positive effects I will experience. Just like belief in a medication working, increases its chances of working. So I take these results as a positive indication that lavender is a nice scent to add to my repertoire because it could do good things.

Here is an article to get you started on aromatherapy for migraines I use more than a few on the list myself. But lavender I am trying out specifically when I have a migraine and seeing if can be one of the ones that helps me manage the migraine.

Nausea: what are the options?

nausea

The nausea.

What do we do about nausea?

You have to have your game plan. Your plan of attack. What to do first, second and third. You have your game plan. Your plan of attack. What to do first, second and third. Because one thing we all don’t want is progression to vomiting, although sometimes, just unavoidable.I will say this, nausea has been constant for me for over a year now. It is the bane of my existence.

1-Medication: Medications that treat nausea are prescription and are called antiemetics. One is called Zofran, and is my current anti-nausea med. Others you may have heard of, or are on, are proclorperazine (Compazine), promethazine (Phenergan), and metoclopramide (Reglan). I know many people on Phenergan. My doctor often mentions metoclopramide but it interacts with another med, but back in the day, it was my anti-nausea med. I should mention in Canada only zofran and metoclopramide have been mentioned to me. What we do have here is Gravol for OTC and I tend to use that as well. Gravol is Dimenhydrinate.

Personally, the zofran doesn’t always cut it for me. I have some intense, constant nausea. So I have been trying some of the other common things we use for nausea with migraines.

medications-342463

2- Peppermint: One that is tried and true is peppermint tea. I love it in tea form. It helped me one time where all I could handle was this tea for days. It truly does work. But in essential oil in a diffuser it has also been used for nausea.

migraineurmutteringsandmusings.com(1).png

3-Ginger– I knew about this one for some time, but have just started putting it to some serious use to see what it can do. You can buy pure ginger candies. You can also have ginger tea. You can by ginger pills actually to avoid the taste. In Canada Gravol sells ginger pills and ginger with willow bark pills. As a perk, since they can go together, maybe it will help with diarrhea as well. And for those of us with vertigo is it said to help with that too. So a lot of symptom effects. Specifically, I am aiming for a decrease on nausea. The candies are Gin Gins that I am eating, but there is a brand of just ginger I am intending to check into. I am not sure if I would like the tea or not, since it is the spiciness of the ginger on my tongue I like. See Ginger post.

ginger

4-Auromatherapy: Essential oils and little diffusers you wear around your neck can help with nausea. As I mentioned, peppermint is one mentioned for that. I had read somewhere that lemon is one but not for me since it really makes me nauseated. So try lemon or peppermint. This site actually mentions some more for nausea to try out.( I do like bergamot, so maybe worth a go on that one… it is light and sort of a citrus scent).

bigstock-135058820.jpg

5- Marijuana- I actually was told my pain clinic would put me on the pill form due to my nausea alone. They don’t believe there is enough evidence for pain, but there sure is for nausea. I am considering it, especially if I drop more weight. I am not posting to studies for it, but there is quite a bit of research on it for nausea.

 

Essentially, I have been using ginger, peppermint tea and essential oils, Gravol and zofran. And that may seem like a lot but this nausea is quite insane. So every bit counts, to be honest. Things like peppermint tea are great for at night as they have no caffeine and are relaxing.