The prevention #MHAM #MHAMSMC

Migraine and Headache Awareness Blogging and Social Media Challenge

What has worked for you for Migraine and/or Headache prevention?

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  1. Sibelium: for the vertigo from vestibular migraines
  2. Oska Pulse: for intensity and frequency of attacks
  3. Botox… unknown yet, but I’ll put it on there because it is my new trial
  4. Topamax: To a mild degree.

I would probably add in other preventative things like:

  1. Meditation
  2. Exercise
  3. Supplements

Oska Pulse

So this is a bit of a carry over from my other blog the Brainless Blogger. I was doing a review for the Oska Pulse hoping to see a benefit with fibromyalgia during three months, which I certainly did… but I have also seen improvements with migraines. So I think I should mention it on my migraine blog as well.

What is the Oska Pulse? Well, it is an external stimulation device designed to relieve pain, muscle stiffness and inflammation through pulsed electromagnetic field technology (PEMF). It promotes recovery for all types of pain and is drug-free.

 

Where to purchase? Price?

You can purchase Oska Pulse at OskaWellness.com. The cost is $399. With my Brainless Blogger discount enter BRAIN in the coupon code and get 5% off.

Return policy?

There is a 90-day money-back guarantee.

Benefits:

  • non-drug treatment
  • an external device, so no surgery to implant it.
  • portable and I can bring it with me anywhere anytime
  • It has a band so I can attach it do my shoulder or back or knees as the need may be. Although for migraines I just lay down with it by my head.
  • Chargeable
  • Runs on 30-minute cycles and turns off by itself.

 

Some Research

“Treatment of migraine with pulsing electromagnetic fields” involved 42 subjects had treatment 1 hour a day for 2 weeks. 73% reported decreased headaches (45% a good decreased and 15% and excellent decrease). 10 went on for an additional 2 weeks of treatment. All showing a decrease in headaches (50% good, 38% excellent).

My Results

So it took a bit to see any results in the migraine area. I use it consistently around 7-9 times a day to start for three months and then now down to 5 times a day. On the head area and body. I have had migraines for 20 years so they are pretty ingrained in me, I assume people who are episodic or with a little less time under their belt would see results sooner than I did.

What I am beginning to see is a decrease in intensity. Some decrease in frequency; I am daily but I have, indeed, had migraine free days. But mostly it is the intensity that is what I have noticed. First, it was a delay in the migraine start time… like later in the day. Then just lower intensity. Some days so low I would be hard pressed to call it a migraine without the other obvious migraine symptoms. Instead of my usual 7-9 daily range, it is 4-9, with the hormonal ones being the highest in there as they, as per usual, don’t respond to much of anything.

Secondly, and I can only assume this is because it is helping with intensity, it is also helping with one of my most problematic symptoms of late: relentless persistent nausea. For two years now that nausea has plagued me. I have eaten zofran like candy with gravol. And peppermint tea and ginger. And I lost 25 pounds because I could barely eat and struggled to keep anything down. 25 pounds of weight loss is a lot for someone with hypothyroidism. My doc wasn’t sure it Was the migraines and tested me like nuts for this random weight loss. Anyway, the Oska Pulse knocked it down about 70%. I take about 1 zofran a day or one 12 hour gravol to managed the nausea. It is such a profound relief to be able to manage that now. And eat. And actually have an appetite.

Anyway, it is helping me at work since work always increases pain. Such is life. So instead of hitting really high points and needing a lot of medication to just get through and crashing when I get home, I am more of a mid-range and getting through with little to no medication.

I am on botox, but only the first round and as a previous non-responder I do not respond to the first round and maybe not at all. At my last appointment when it hadn’t done anything yet my doc wasn’t very optimistic. But I am going for another round anyway. So the results I have been getting are unlikely to be that. Also I ran out last month as I am late to get in for the next round, so actually shouldn’t be responding at all at this point. Nevertheless, I believe in all avenues of treatment so I am going to do Both. Other things I currently do for treatment are magnesium oil, B vitamins, ice, Japanese mint oil topically and exercise. Medication: topamax and relpax.

 

 

The Botox

BOTOX for migraine feels a lot like rubbing a porcupine all over your head for funsies..png

So a couple days after my BOTOX and my forehead feels stiff and my eyebrows are stiff as well. This is better than the first time which I got complete numbness over the forehead for the whole duration and could not move my eyebrows a bit. So an improvement I’d say since I still have sensation.

“When the researchers looked at the placebo-controlled trials, they found that Botox was associated with about two fewer headaches a month for people with chronic migraines and those with chronic daily headache. However, the report states that “Botox is no help for people with episodic migraines (fewer than 15 a month) or chronic tension-type headaches.”” Migraine Again

Basically they say a ‘modest’ improvement. And really 2 migraines less a month doesn’t sound astonishingly impressive. But when you consider what we are Dealing with anything is a good thing. So yeah maybe 2 less migraines. But also maybe less intensity, so there is that.

But I generally will not know yet. This is my first round which generally doesn’t show a damn thing. Usually benefits are not seen until the second or third go around.

So it isn’t fun to get, or experience after, for a modest benefit. That is what migraineurs are willing to do for their pain… any damn thing that helps in the least bit.

Got botox? In the brain?

Facial Injection For Women

Well they don’t shoot it into the brain. But it IS supposed to stop the brain pain. Well the brain doesn’t feel pain. But the signals coming out from the brain.

What I am saying here is Botox is one of the two things used to treat chronic migraines, the other being Topamax, which I am also on.

I got botox 7 or 8 years ago. Don’t even remember how long ago it was. But I was not a responder. As in it didn’t work at all. But I also only had it across the forehead, not the full protocol they have now. The protocol now is 31 shots in the locations below:

BOTOX USPI OAB ONLY (Track-changes)_AGN comments

The recommended dilution is 200 Units/4 mL or 100 Units/2 mL, with a final concentration of 5 Units per 0.1 mL (see Table 1). The recommended dose for treating chronic migraine is 155 Units administered intramuscularly using a sterile 30-gauge, 0.5 inch needle as 0.1 mL (5 Units) injections per each site. Injections should be divided across 7 specific head/neck muscle areas as specified in the diagrams and Table 2 below. A one inch needle may be needed in the neck region for patients with thick neck muscles. With the exception of the procerus muscle, which should be injected at one site (midline), all muscles should be injected bilaterally with half the number of injection sites administered to the left, and half to the right side of the head and neck. The recommended re-treatment schedule is every 12 weeks.Drugs.com

 

And it looks painful to have 31 needles jabbed into your head injecting a fluid. But it sounds more painful than it is. The forehead does hurt a little, because of the nerves and thin skin. But once they go around to above the ears and back of the head and to the shoulders… not bad at all. Meh, I’d say. Didn’t mind it t’all. Keep in mind I have no fear of needles in the least bit.

Your forehead though does ache after for some time. Stinging ache from that abuse thrust upon it. And as one might expect it does trigger a migraine, or I was getting on anyway, hard to say.

We shall see how to feels tomorrow after it settles.

Save

Botox happening soon

 

Facial Injection For Women
Clearly getting BOTOX cosmetically but you get the point. Needles in the face.

I am getting to Botox soon. I will Be done. I don’t effing care if it takes three rounds to have any potential effects. I want to start now to see if I get those effects.

Just have to get the damn insurance company sorted out with its pre-authorization to authorize me to use it for medical purposes. Which if it is late then my appoint will have to be back up further. One way or another it is Happening.

Here are some of the side effects you might want to watch out for :

The injections are slightly prickly or stingy and take about 5 minutes to complete.

It is possible, though rare, to have an acute allergic response so you should stay in the clinic for several minutes after the first set of injections.

Less than one in ten patients experience each of the following side effects:-

ā  Worsening migraine. This can begin within a day or two of the injections, usually lasts a small number of days. It can be treated with triptans and/or regular naproxen 250 mg or 375 mg three times daily after meals.

ā  Rash, itching

ā  As with all injections; pain, bruising, bleeding or infection where the injection was given are a possibility

1.       Drooping of eyebrows or eye lids. This begins after a couple or a few weeks and can last for a small number of weeks.

2.       Muscle weakness, pain, cramp, stiffness or tightness

3.       Weakness and pain in the neck. This begins after a couple or a few weeks and can last for a small number of weeks. It can be treated with regular naproxen as in (1) above.

Less than 1 in 100 may experience:

ā  Difficulty in swallowing

ā  Skin pain

ā  Jaw pain

ā  Swollen eyelid

 

If you have any difficulty in breathing, swallowing or speaking after receiving Botox contact your GP immediately.

If you experience hives, swelling including the face or throat, wheezing, feeling faint and shortness of breath please also contact your GP immediately.National migraine center

I never experienced any of that when I went. However it did make me feel like crap. Immediately more pain and a wicked migraine. And that seems to be common. That stick needles into a head and oddly enough it causes so aggravation and pain. The migraines don’t agree with it a go a little nuts. The day of botox, isn’t a pleasant one.

Just how effective are we looking at here? Everyone benefits? Only 25% or is it 75?

The goal is not to become completely free of headache or migraine; but to improve quality of life, and to convert migraine from chronic to episodic.

About one in four patients do not respond; one in four respond well to the first or second set of injections, and half need more than two sets of injections to get a good response.  Studies show show that 47% of patients had a 50% or greater reduction in the number of days with headache.

The biological effect of botulinum toxin on nerves takes several days or a few weeks to work. You should not expect chronic migraine to improve properly in less than 4 weeks. Some patients do not start to improve until after their second set of injections which is given 12 weeks after the first set of injections.National migraine center

1 in 4 patients do Not respond. Which would be me last time. And why every neuro since believes I won’t again. Other take time… and that is the category I might be in since I only ever did one round of noresponse. Anyway 47% get a 50% reduction in the number of migraine days. That impresses me. Hell at this point I would take a significant reduction in intensity.