So I have migraines. I actually have a long standing blog called the Brainless Blogger but I wanted something strictly for migraines and migraine awareness.
I was diagnosed with Migraine with aura when I was 20. That was when I had my first typical migraine. Horrific pain. Scintillating scotoma aura like below. I had no idea what it was. However, pretty easy to diagnose it was so typical at that time.
However since the age of 12 I had been getting corona auras around people and objects so I speculate silent migraine before then.
The migraines were frequent off the get go. They were about 4 a month. I didn’t become aware the nasty ‘headaches’ during my cycle were actually migraines as well which brought me up to around 8 a month.
From there they gradually became more frequent and then chronic. Until… daily. Which has been around a decade now? Hard to even remember now to be honest. Don’t even remember the last migraine free day, but it was a few years ago at least. I remember the clarity of my day and the productivity. I remember the contrast to my regular existence vividly. I wasn’t treated with preventatives until they became chronic because my doctor simply didn’t send me to a neuro right away. He didn’t diagnose my menstrual related migraines. So the count was lower than he thought. By the time it was high enough, I was actually pretty well over. He had tried the top three preventatives to no avail and around here (Canada) it takes forever to see a neuro. So a year later and you finally get in to hopefully get some progress. Only to find out you are a complicated case and don’t respond to treatment. Years later and many medications later. Weight gain, weight loss.
I also developed persistent migraine auras. So I lost that perfect indicator of impending doom and instead gained the ocular distortions whenever they decided to occur and then also sometimes before a migraine.
About five years ago I developed migraine associated vertigo, now called vestibular migraines. It includes sensation of motion where there is none, rocking sensations, rotational vertigo, drop attacks and disequilibrium that makes you feel unstable and like you are walking on moving, sinking ground.
If you name a treatment I have likely tried it. My neurologists have run out of ideas and sent me to the pain clinics instead. I may give botox a second go around just for the fun of it although I have been told it is a very slim chance of success. I am currently on Topamax and I like to believe it sometimes reduces intensity, but that may be wishful thinking on my part.