Warning: You are losing money by using migraine

migraine-awareness-2

I hate to say it but if you are using migraine you will lose money.

I use migraine a great deal. I admit it I do. I use them every day. And I have to say they have done nothing for my career at all or my ambition. Not using them seems like the best option, but they don’t come with that feature. One you have them they run on their own schedule and do not permit un-installment.

The use of migraine causes:

  1. missed days
  2. limitations at work
  3. stopping work altogether
  4. reducing hours worked.
  5. changing jobs
  6. loss of productivity.

So this:

have-too-much-ambition_-on-the-fast-track-and-dont-know-how-to-get-off_try-migraines

But it isn’t just work that is affected by our frequent migraine use. It is all the other things one must do if they have the migraine habit established in their brain system. The supplements. The alternative treatments. The vitamins. The essential oils. The whatnots. And the what-have-yous. These cost money. They we often do not have because our work was affected. Costs not covered by insurance for things like Botox. If you Like needles in your head, then migraines are for you.

Migraines are a loss loss sort of deal. If you are thinking about using them I recommend a mild tension headache instead. Once your brain uses a migraine, it tends to get fixated on the idea. Then it is migraine this, migraine that… it just wants migraines all the time.

If you want to be rich, tell your brain No to migraines.

*Read with heavy sarcasm*

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Silent no more

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Migraines are an invisible disease. You can’t see the pain. Let’s make the IMPACT visible for people to see. Let’s tell them how migraines have affected us mentally, emotionally, physically, economically, socially, career, family wise… and every other impact factor you can think of.

I will be sharing images of impact on me and posted them to my Page. And I will be tweeting impact posts with the hashtags #MigraineVisibleNow and #MigraineImpact.

I want to spread some awareness on the impact of migraines. And let’s see if others will do the same.

 

 

 

 

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Looking at working facts

migraine-awareness-2

I used to work with a lady with episodic migraines. She would leave work when she had one. And everyone would get this. Accommodate that. Understand it. It is a migraine, you can’t work with it.

There I was with chronic migraines, working right along with her. Unable to go home when they struck. God forbid I missed a day for a severe one even I couldn’t function with.

I get the double standard. I had chronic pain, I had to suck it up. Function. Be there. Just do it. Pretend I was cool with that. Pretend it wasn’t extremely difficult and painful. That it wasn’t giving me suicidal thoughts.

And then there is this…

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High frequency migraines and chronic migraines have the same Impact. On Income, Employment, disability. Increases in anxiety, depression and bipolar disorder. Higher rates of chronic pain, asthma, heart disease and stroke.

We have extreme problems functioning in the work place and it affects our capacity to work which leads to compromises in hours, jobs and whatever we can do and then as a result our incomes suffer. Eventually many of us, those that are daily for sure, find we cannot work at all. And I find a hard time understanding why this is surprising to anyway. Not when everyone knows a run of the mill person with an episodic migraine would Never be expected to work in that pain, nausea, sensory overload, neurological dysfunction. Do they imagine we have a ‘different’ migraine, because we do not. All we have is a way to mask the pain.

Those who can work often find a perfect niche that allows the perfect flexibility, environment and pay for them to be able to function enough to handle it. Others have to work and have no choice in the matter, and they suffer greatly doing so. Others can handle the frequency they are at with the medications they are on… in other words they are not intractable, so have some results from a medication that helps with intensity or frequency.

Some of us are intractable. Some of us have daily migraines. In what world does working make sense with those two facts?

The disability question

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How long do you persist with working through pain? It is a question I ask myself all the time. There are a lot of factors to consider and I grasp them all. There is income stability. There is the factor of work helps with isolation, the sense of productivity and is emotionally and mentally beneficial. We feel good when we work. But then there is the chronic illness. The pain.

Continue reading “The disability question”

Living in the pain limits

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We all have limits.

And I have posted about the dangers of exceeding our limits. If we live in that survival mode where we are constantly exceeding our limits. It is dangerous. It is pure hell. It is an existence not a life. And something needs to be done to change that. Some change. To work. To pain management. Something. No one should have to suffer like that. Ever. I lived like that too long and then tried to die, because no one wants to live like that. It simply isn’t living at all it is surviving.

Continue reading “Living in the pain limits”

The vacation:Okanagan

I went on a holiday to my uncles cabin for a week. I went with my spouse, mom and step-father. We drove straight 12 hours to get there, well, I didn’t… my mom and spouse did… but nevertheless I felt the impact of that. Since I have FM in addition to chronic migraines it quite hit me in the body. I had thought it wouldn’t be any different than when we break it up into two days. Pain is pain. But apparently the impact was quite intense into the next day. It flared up my IBS quite a bit as well. Not pleasant on the whole fibromaylgia side of things. Ergo and therefore, on the way back, we broke the journey into two days and far more pleasant on All of us.

The migraines were rather unpleasant for me this trip. I must say I was surprised at this. Usually my mellow stays at the cabin is pretty refreshing on the brain ball. Unfortunately I had some serious pain the first day with just the most intense nausea. The second day the migraine hit about a couple hours after getting up and was a real dumification migraine… zoned out and brainless, intense auras and the again with the nausea. I blame the nausea entirely on the migraine associated vertigo triggered from the drive, which wasn’t severe, but was just there enough to be noticeable and aggravate my stomach. Pretty much for most of the week I was taking Gravol to control the nausea. On night that and my anti-nausea med wasn’t sufficient. The first two days I did take my triptan and it did work for about 2-4 hours dulling the pain in there, which helped me manage things a bit. Gives you that window in there anyway.

Irony was I was feeling pretty good on the fourth day but the weather was not. So i wasn’t able to go out on the water with my spouse in the canoe which I was hoping to do, once I got the nausea tempered down. But such is life, maybe if we go back I’ll have better luck. It is really nice when he takes me out there. I quite enjoy it, but of course the MAV and nausea need to me quite handled.

So you know not all vacations can be migraine free or even migraine moderate. Just the way it is and this time around was just way more symptomatic than last time. But my nausea has been quite There lately. So it was more mellow and that is fine by me. The operate word is to relax anyway.

Things I did do?

  • Relaxed
  • Chatted
  • Had a fire
  • Watched some movies
  • Played some crib and lost horrifically
  • Went to a winery called ‘See ya later’ and sampled their white wine and bought a bottle. Which I indulged in on my good night I had there. Apparently I can have about one large glass and that is all to get me ‘happy’. Don’t have much of an alcohol tolerance.
  • Went to a great ice cream place and had some awesome ice cream
  • Went back to the ice cream place about bought some fudge. Mmmm
  • And read a good book

My spouse did some fishing and went out on the kayak quite often. And we took scenic routes on our drives to the winery and the ice-cream place.

Here is the thing about vacations. I would have been in migraine hell anyway. More actually. Because I would have been working. So this is a vacation from the intensity of pain from working with a migraine. From putting on a ‘facade’ and smiling through the pain. From having to ‘function’ through the pain. And going to a place I find soothing, relaxing and beautiful. Where I can be with people I enjoy and do things I like, where they can do things they like and we can all have BBQ and chill. Yeah, the pain comes along for the ride… but as I said it was going to be there anyway. Might as well have a break from the work aspect and choose a wonderful environment and the people you are with and relax.

You do have to pace yourself, moderate you activities and stay within your limits of course. Which is why I am pretty mellow on vacations. Choose a Thing to do a day, and the rest is casual depending on mood and energy. At the cabin though it is all really dependent on mood and energy. Am I in the mood for a road trip for fudge? Or to read my book? Maybe watch a scary movie? Chillaxin vacation. Just what a need from all the stress lately to be honest.

 

Migraineur adventures in university

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Today I am going to talk about migraines in University and College. My migraines began when I was in university and were well into chronic by the time I was in my Masters. Due to those migraines being as frequent and poorly treated I did not go for my PhD and instead entered the work field. I am not going to say going for higher education is easy with chronic pain, because it is a challenge. However, it is also rewarding. I believe it takes a lot of determination.

In University when my migraine where chronic my main issue was getting to class on severe days. Intense nausea and vomiting that was a serious issue with my migraines then. Having concentration problems, speaking problems, aphasia and brain fog. A few of the medications I tried made my brain fog substantially worse which affected my work which was obviously a major concern. I remember a paper I wrote on one preventative and when I got it back, I had passed, but it was far below my usual grade and standards. When a read it over, I could see why. It was clearly written by someone who had no focus or concentration. I knew the medication had been making me groggy and dopey but until that moment I had not realized how much. I told my doctor if I could not Function there was no point in taking it. So medications themselves cause us additional issues. I also very clearly remember due to brain fog, aphasia and pain that it took me far longer to edit my Master’s thesis than to actually write it. All those errors from writing and researching with migraines were all wrapped inside it, and I had to weed them out (you guessed it) with migraines.

Remember going to university or college is a significant change in your life. Significant changes can cause increases in pain, extra emotional distress and a great deal of stress. None of which is good for migraines. It is in our nature to conceal our suffering from others in order to function but this often creates a sense of isolation and we no longer have our familiar support network of family and friends to fall back on if we are living somewhere far from home. This time in our lives strain our coping strategies because the methods we used to cope with our disability are not always effective in our new environment.

Continue reading “Migraineur adventures in university”

10 reasons working with migraines sucks

All ready to go to work.So is the 9 level migrainetriptan failedwhat do you do_

Let’s face it working with migraines sucks balls. No two ways about it. It just does. I could write a detailed book about how much it has sucked in various ways but I think I would have to not refer to my employer on that one.

So lets see why Does it suck:

1) Forgetting people’s names: This is massively embarrassing in customer service where you know customers for-freaking-ever and can’t manage to remember their name through the pain. But it applies to All fields when you spontaneously forget that dude you have worked with for 10 years. What was his name again? Starts with a… B? Ish… Bish. Who knows. And I wouldn’t ask and feel like a complete wad of dumb.

2) Loss of math: Loss of math skills. Complex. Easy. Just math. Gone. Got to math through haze of pain and confusion. Got to. And use a calculator. Get three different answers when I tried to confirm. Just brilliant. Migraines seem to have a special dislike for math.
Continue reading “10 reasons working with migraines sucks”

Silent minority

 

My pain is a burning star in the night sky.

We are not alone. So many people suffer with chronic pain. The numbers are staggering. Billions. We are a pretty silent billions though.

 

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I often feel we are a silent minority. That no one wants to hear about our plight.

One of the hardest things about being chronically ill is that most people find what you’re going through incomprehensible—if they believe you are going through it. In your loneliness, your preoccupation with an enduring new reality, you want to be understood in a way that you can’t be. “Pain is always new to the sufferer, but loses its originality for those around him,” the nineteenth-century French writer Alphonse Daudet observes in his account of living with syphilis, “In the Land of Pain.” “Everyone will get used to it except me.

—  -New Yorker, “What’s Wrong With Me?”

In the land of pain everyone will get used to it but me. It will always be fresh for me. Old news to everyone else. They tire of it. Other people do not want to hear about it. They want your functionality. They want you to pretend to be normal. To strive to be so, even when you have limitations they don’t seem to comprehend. They want you to push through the pain because isn’t it ‘always going to be there?’ They want you to deal with it. Suck it up, buttercup. And hide it. Smile. Be a good, functioning employee. A functioning member of society. Don’t complain about it.

The sense of isolation creeps up on you. Always striving to maintain and never quite succeeding. Always trying to cope with the pain. Think though it. Presenting a facade that is acceptable in public. It is exhausting. You wish people comprehended in the least little bit how difficult it was to get up, to move, to pretend to function to present that facade and get through a day. Just one day. To live a day at a time because that is all you can get through. Just day by day, hour by hour, minute by minute. If they only knew the sacrifices. The careers you had to give up. The ambition you can’t have. Because the pain simply will not permit it. Your very life lived in limitations, moderation and pacing. As best you can, because working saps so much pain tolerance and energy from you.

But in the land of pain… life is different. The rules are different. Life is different. In the real world, people do not see it.
Chronic pain sufferers kept silent and under-treated under new pain regulations.

And they want our silence. As the medical community obsessing about addiction such that they do not even seem to care about the quality of life of chronic pain patients… they don’t care to hear from those chronic pain patients. They are suddenly ‘difficult’ and ‘drug seekers’ and notes are put in their file. For speaking. For saying “I am suffering more than usual and I can’t handle it. It is exceeding my capacity to cope with.” Clearly… that should be ignored. Clearly it would be So Much Easier if we would just suffer silently. Under-medicated. With no quality of life. The pain exceeding our capacity to cope with it.

I have a pretty good medical team myself and opiates are not a viable option with chronic migraines. I have a slow release tramadol that isn’t causing rebounds, but any other would. It doesn’t work for chronic migraines, but mildly for FM. I have little that can be done for my migraines. So I suffer. When it comes to the regulations I speak more so for those in the States and in BC Canada who seriously are in need of opiate treatment and have been taken off completely due to this or dropped as patients because their doctor doesn’t want to ‘deal with a pain patient’ or had their dosage severely reduced. And they have no rights. No voice. They are not addicts. These laws were not designed for them. They are just being punished for them.

Nevertheless isn’t that what society wants? For us to not complain? Do they realize what no quality of life means? It tend to mean no work for one thing. No being productive. No capacity to do anything. To means an existence of survival mode. Just getting through the pain and nothing else. Dooming someone to that is cruel. It is ironic. There are far more chronic pain patients than there are addicts. Addicts will get their drug of choice whether these regulations exist or not and everyone knows it. So all the ones that will suffer are those that suffer quite enough already.